tag:blogger.com,1999:blog-726388883619960935.post7526426659625208204..comments2023-12-14T11:20:00.527-08:00Comments on Medicana: Alice in Wonderland SyndromeMauigirlhttp://www.blogger.com/profile/15529827915262851910noreply@blogger.comBlogger38125tag:blogger.com,1999:blog-726388883619960935.post-9257573528198174182017-09-11T03:49:09.176-07:002017-09-11T03:49:09.176-07:00I suffered from this horrible sydrome (ALZHEIMER&#...I suffered from this horrible sydrome (ALZHEIMER'S DISEASE)...and it was horrible...for the past 3 years this has taken over pretty much all of my walking moments along with other medical issues. My family/friends have been with me through it all. But Today I am 107 days pain free!! I can't even believe how this all happended...I am just as amazed as, my family/friends are...none of us can believe how long I suffered and now in literally a matter of 107 days I was completely pain free.<br />How? Well let me tell you.....Months ago my Friend told me about something called ZOMO HERBS....I heard him, but I didn't listen.....I went on just suffering along, Then My friend Raval, talked to my wife about it one night, when I was at my lowest point.....just wanting to give up...this wasn't the way I wanted to live...always in constant pain..Raval said, I will send you ZOMO HERBS..... I started using it and the rest is history my friends, There was a light at the end of the Tunnel... The results were immediate, it did take my pain away, but not completely....it was not until I upped the dosage to 3 times daily that I saw complete results.....NO PAIN.....I became so thrilled over the results that I decide to share my testimony.....If I can help even one person and that person helps one person and so on...we can all be out of pain and regaining our lives back....sound good? I have my life back!!!! I want you to have yours back too! Simply try to reach the doctor on (charantova@gmail.com) for more information about his treatment process or how to get his medicine.Anonymoushttps://www.blogger.com/profile/04364548663026372762noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-70596673122102766492013-12-09T06:46:46.698-08:002013-12-09T06:46:46.698-08:00Hello there,
I am just wondering if anyone would...Hello there, <br /><br />I am just wondering if anyone would like to answer a few questions about their experiences of living with alice in wonderland syndrome. <br /><br />I am writing my dissertation to see if there are any similarities across peoples responses.<br /><br />This would be a great help <br />Please email L1026314@live.tees.ac.ukAnonymoushttps://www.blogger.com/profile/02759448300080744736noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-88935978281492805442013-01-02T22:49:27.861-08:002013-01-02T22:49:27.861-08:00My 10 year old son recently started having these a...My 10 year old son recently started having these after starting a medication for a mild tic disorder. As an RN, my first thought was the medication, guanfacine (which is a mild anti-hypertensive used for ADHD and tics). His neurologist said that this was quite common in children and was most likely not due to the medications, it's not a known side effect of guanfacine. However, they have been happening quite often and only started after he had his dose increased pretty significantly. So, I decided to call the pharmacist since my son is adamant that it is from his medications. As you can imagine, he is extremely nervous to take even one more dose. The pharmacist says that this is a symptom of something with his central nervous system and, since this medication effects the CNS, it could be the cause and we should discontinue and call the Dr tomorrow. He says it could be making his blood pressure drop low enough that it's making him perceive things like he is. My son says things seem to be going really fast to him. Something that he has never experienced prior to a couple of months ago. So, it seems warranted to stop the medication and see if this goes away. Yet ANOTHER case of a Dr not listening to a Mom who knows her child. Parents, especially Moms, always listen to your instinct! <br /><br />Alice in Wonderland Syndrome in itself is not serious. However, it "can be" a symptom of something more serious. i.e. a tumor or possibly a reaction to a medication. My son did currently undergo testing to check for seizures as he has a very mild for of Aspergers, which we all know is neurological. So, I am happy to say his Neurologist is doing the necessary tests. Again, listen to that inner voice. It's there for a reason. Anonymoushttps://www.blogger.com/profile/08553319843301036494noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-82468898850044728592013-01-02T22:42:28.488-08:002013-01-02T22:42:28.488-08:00My 10 year old son recently started having these a...My 10 year old son recently started having these after starting a medication for a mild tic disorder. As an RN, my first thought was the medication, guanfacine (which is a mild anti-hypertensive used for ADHD and tics). His neurologist said that this was quite common in children and was most likely not due to the medications, it's not a known side effect of guanfacine. However, they have been happening quite often and only started after he had his dose increased pretty significantly. So, I decided to call the pharmacist since my son is adamant that it is from his medications. As you can imagine, he is extremely nervous to take even one more dose. The pharmacist says that this is a symptom of something with his central nervous system and, since this medication effects the CNS, it could be the cause and we should discontinue and call the Dr tomorrow. He says it could be making his blood pressure drop low enough that it's making him perceive things like he is. My son says things seem to be going really fast to him. Something that he has never experienced prior to a couple of months ago. So, it seems warranted to stop the medication and see if this goes away. Yet ANOTHER case of a Dr not listening to a Mom who knows her child. Parents, especially Moms, always listen to your instinct! <br /><br />Alice in Wonderland Syndrome in itself is not serious. However, it "can be" a symptom of something more serious. i.e. a tumor or possibly a reaction to a medication. My son did currently undergo testing to check for seizures as he has a very mild for of Aspergers, which we all know is neurological. So, I am happy to say his Neurologist is doing the necessary tests. Again, listen to that inner voice. It's there for a reason. Anonymoushttps://www.blogger.com/profile/08553319843301036494noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-85968452524183239832013-01-02T22:42:16.091-08:002013-01-02T22:42:16.091-08:00My 10 year old son recently started having these a...My 10 year old son recently started having these after starting a medication for a mild tic disorder. As an RN, my first thought was the medication, guanfacine (which is a mild anti-hypertensive used for ADHD and tics). His neurologist said that this was quite common in children and was most likely not due to the medications, it's not a known side effect of guanfacine. However, they have been happening quite often and only started after he had his dose increased pretty significantly. So, I decided to call the pharmacist since my son is adamant that it is from his medications. As you can imagine, he is extremely nervous to take even one more dose. The pharmacist says that this is a symptom of something with his central nervous system and, since this medication effects the CNS, it could be the cause and we should discontinue and call the Dr tomorrow. He says it could be making his blood pressure drop low enough that it's making him perceive things like he is. My son says things seem to be going really fast to him. Something that he has never experienced prior to a couple of months ago. So, it seems warranted to stop the medication and see if this goes away. Yet ANOTHER case of a Dr not listening to a Mom who knows her child. Parents, especially Moms, always listen to your instinct! <br /><br />Alice in Wonderland Syndrome in itself is not serious. However, it "can be" a symptom of something more serious. i.e. a tumor or possibly a reaction to a medication. My son did currently undergo testing to check for seizures as he has a very mild for of Aspergers, which we all know is neurological. So, I am happy to say his Neurologist is doing the necessary tests. Again, listen to that inner voice. It's there for a reason. Anonymoushttps://www.blogger.com/profile/08553319843301036494noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-21489109343279099412012-10-03T19:38:10.397-07:002012-10-03T19:38:10.397-07:00I had this as a child. Mine included halucinations...I had this as a child. Mine included halucinations. The most repeated, frightening, one would be when I was in my room at night. The walls would be very far away, but also close enough to smother me. The entire globe of the earth was on my bedroom floor (a halucination, I didn't have anything like that) shrunk to fit somehow, and I could SEE every single person. And they were falling off, like the styrofoam beads might come out of a beanbag. And I had to collect them all up and put them back before they died. This happened EVERY NIGHT. People dying, right in my room, the whole world over. But of course, how could they, the world couldn't be there in my room, how could I reach it if it were there, it would have to be so far away to be that small in my vision, but it was right there - I could see the people! My mother must have thought I was insane when I tried to explain to her, and she didn't see the world, either. I think my dad must have suffered from this as a child too, he told me "it's okay, you won't see things if you stare at a light bulb. That's the only thing that works." So I stared at the light in the hall every night until I fell asleep, and if I woke up, I turned it back on...if I could see the floor waaaay down there to get to it. I had the sound sensitivity, too. I could literally hear every word spoken in the house from any room, and yeah, the staring at the light worked, because I was light sensitive too, so it pretty near blinded me each night. Dad was right. <br /><br />As I hit my preteens, it progressed into childhood epilepsy. Into my 20s, they said that if I had been on that dose of epilepsy drugs for so long with no seizures or dose changes, I likely didn't need it - wean off and see. And I never had another seizure. <br /><br />But I developed wicked migraines that blurred one right into the other. Many issues later with spine and nerves...and to summarize, I don't receive pain signals well, sometimes not at all. <br /><br />I get migraine auras now, but not the migraine. Sometimes, the flashy lights blind me because they cover my vision. I thought it was just optical symptoms, so I never brought it up to the doc. Recently, I was complaining about not being able to see through the aura lights. He said that it's very rare to 'only' have the optical symptoms. That it's much more likely that I am having all the other migraine ssymptoms, minus 'just' the pain. Yes, a nice minus, but all the rest of it is still hanging round. Ohhh. <br /><br />I find it interesting to look back and see the neurological connection all the way into childhood. I wonder if it were treated at that time, if it would be less severe now. The Other Lefthttps://www.blogger.com/profile/10966744256514210535noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-17216902386572783282012-06-09T16:37:56.706-07:002012-06-09T16:37:56.706-07:00I also suffered this as a youngster,i would be sit...I also suffered this as a youngster,i would be sitting on living room chair getting a telling off when my dad and the rest of the room would be right in my face almost touching, then the room would shoot back out like a long corridor with my dad sitting in his chair what seemed like a mile away ,when he seemed far away i could hardly hear him and at the time this happened i could not move and felt like i was sinking into the chair.I also got bed spins at night and sometimes the room would close in on me to the extent i would be trying to push the ceiling away from me,plus very bad nightmares,this only seemed to happen in childhood and went away by its self,another thing is i have never really suffered from migrains.(pretty scary at the time with no control over it,i just had to sit it out till it stopped)Anonymoushttps://www.blogger.com/profile/08375243605761540461noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-78723732128701653092012-06-09T16:22:23.676-07:002012-06-09T16:22:23.676-07:00I suffered this in my school years but never told ...I suffered this in my school years but never told my parents,usually as i can remember i would be sitting in my living room,and i think probably getting a row for something, then suddenly my dad would be right up next to me inches away then it could go the opposite way as if the room was like a long corridor and he was 100 foot away,when this was happening i felt like i was sinking into the chair and could not physically move.I also suffered from bad nightmares and can remember trying to push the ceiling away from me as i felt like the room was closing in on me and i filled the entire room.I have never mentioned this to anyone ,at the time i didnt know what was wrong so i never brought it up,i dont get it anymore but reading this reminded me ,i also have never really had bad migrains,i also used to get the room spining but only when i was in bed.Anonymoushttps://www.blogger.com/profile/08375243605761540461noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-30567448055295355842012-05-18T02:37:51.704-07:002012-05-18T02:37:51.704-07:00Im 18 and i just expirienced this five minutes ago...Im 18 and i just expirienced this five minutes ago and i got scared and googled it but i also expierenced it as a child and i kind of liked it idk why but my uncle had hederetary schizophrenia and idk maybe thats it but this explains a lot i hope i can sleep nowalannapantsshttps://www.blogger.com/profile/06258533554972509896noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-9688423171804485052012-03-24T12:37:30.845-07:002012-03-24T12:37:30.845-07:00I stumbled onto this syndrome by accident online. ...I stumbled onto this syndrome by accident online. I was astounded.<br /><br />I had this syndrome when I was a child. I called it “Big Feelings”. I didn’t know how to explain to my parents what was happening to me other than to say I was having “Big Feelings”. I would also go into panic mode and shake all over. Sounds would seem much louder than normal. I remember laying on my bed and crying and shaking. My mother kept saying “What’s wrong sweetie, what’s wrong!” I put my hands over my ears and said “Stop talking so loud!!” My mother would say “I’m not talking loud; I’m talking normal” but it would sound like shouting to me.<br /><br />I even missed school because of this syndrome. It really distressed my parents, especially my mother. The episodes would usually last an hour or two and then gradually subside.<br /><br />As I grew older, I discovered that if I watched television, the condition seemed to clear up. Maybe it was the result of focusing on something. I don’t know. As I came to understand that it was only hallucinations and it would not hurt me, I grew out of it.<br /><br />All my life, though, I have wondered about it and wondered what it was. My parents never sought medical council for me. I stumbled onto the syndrome accidently when researching Complex Partial Seizures for my husband who has epilepsy.msederoffhttps://www.blogger.com/profile/02383493055150224583noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-9532377201630328072012-03-24T12:37:27.738-07:002012-03-24T12:37:27.738-07:00I stumbled onto this syndrome by accident online. ...I stumbled onto this syndrome by accident online. I was astounded.<br /><br />I had this syndrome when I was a child. I called it “Big Feelings”. I didn’t know how to explain to my parents what was happening to me other than to say I was having “Big Feelings”. I would also go into panic mode and shake all over. Sounds would seem much louder than normal. I remember laying on my bed and crying and shaking. My mother kept saying “What’s wrong sweetie, what’s wrong!” I put my hands over my ears and said “Stop talking so loud!!” My mother would say “I’m not talking loud; I’m talking normal” but it would sound like shouting to me.<br /><br />I even missed school because of this syndrome. It really distressed my parents, especially my mother. The episodes would usually last an hour or two and then gradually subside.<br /><br />As I grew older, I discovered that if I watched television, the condition seemed to clear up. Maybe it was the result of focusing on something. I don’t know. As I came to understand that it was only hallucinations and it would not hurt me, I grew out of it.<br /><br />All my life, though, I have wondered about it and wondered what it was. My parents never sought medical council for me. I stumbled onto the syndrome accidently when researching Complex Partial Seizures for my husband who has epilepsy.msederoffhttps://www.blogger.com/profile/02383493055150224583noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-42230336541365503062012-03-24T12:35:55.848-07:002012-03-24T12:35:55.848-07:00I stumbled onto this syndrome by accident online. ...I stumbled onto this syndrome by accident online. I was astounded.<br /><br />I had this syndrome when I was a child. I called it “Big Feelings”. I didn’t know how to explain to my parents what was happening to me other than to say I was having “Big Feelings”. I would also go into panic mode and shake all over. Sounds would seem much louder than normal. I remember laying on my bed and crying and shaking. My mother kept saying “What’s wrong sweetie, what’s wrong!” I put my hands over my ears and said “Stop talking so loud!!” My mother would say “I’m not talking loud; I’m talking normal” but it would sound like shouting to me.<br /><br />I even missed school because of this syndrome. It really distressed my parents, especially my mother. The episodes would usually last an hour or two and then gradually subside.<br /><br />As I grew older, I discovered that if I watched television, the condition seemed to clear up. Maybe it was the result of focusing on something. I don’t know. As I came to understand that it was only hallucinations and it would not hurt me, I grew out of it.<br /><br />All my life, though, I have wondered about it and wondered what it was. My parents never sought medical council for me. I stumbled onto the syndrome accidently when researching Complex Partial Seizures for my husband who has epilepsy.msederoffhttps://www.blogger.com/profile/02383493055150224583noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-68508250555815168982012-01-24T23:46:14.518-08:002012-01-24T23:46:14.518-08:00I experienced AIWS as a child, often telling my mo...I experienced AIWS as a child, often telling my mother about my strange symptoms which I normally experienced at night as I would try to drift off to sleep. The symptoms disappeared as I grew into my teens. At the age of fourteen I was diagnosed with chronic migraines and treated for them with topamax. I stopped taking the drug and I assume I "grew out of" the migraines. I am now 19 and began experiencing the disturbing symptoms I remembered having as a child in september of 2010. Coincidentally, around the same time my symptoms reappeared, I had a pretty severe blow to the head in a rock-climbing accident. I also began to indulge in psychoactive drugs when I turned 17. I no longer use these drugs and I strongly believe that my reappearing symptoms of AIWS were not caused by them --- especially seeing how my symptoms returned only weeks after hitting my head in September of 2010. <br /> <br /> I have a family history of migraines and severe anxiety. I find that my symptoms are often correlated with anxiety, especially now that I am in college and under a lot of stress as a pre-nursing major. My symptoms include visual distortions --- often feeling the "fish eye" effect --- where things in my direct vision seem to be coming closer or moving further away. As I lay in bed, I sometimes experience the feeling of my bed falling out from under me, sinking into my bed, or feeling as if my legs are growing miles long. The symptoms feel so real that I find myself turning on the light to make sure it's just a sensation. I also experience strange auditory hallucinations when under a lot of stress--- all incoming sounds seem aggressive, very loud, and have a metallic or "crunchy" feeling. These symptoms are very hard to describe and trying to find the correct vocabulary to describe them is nearly impossible. <br /><br />I have been seeing a psychologist for a while now and she confirmed my belief of having AWIS (although she had to do a lot of research first because she had never heard of the syndrome). I am not currently taking any medication for AWIS and don't plan on doing so. I am in the process of finding a natural solution that works for me. I am glad to finally be able to put a name on my strange disorder, and to know that I am certainly not alone. <br /><br />As scary as these symptoms may sound, I have actually began to enjoy them and often find myself giggling over them! My only real issue now with my AWIS symptoms is that they can become annoying and make it difficult to concentrate on my school work. <br /><br />Thanks for the article and interesting blogs!lnb8423https://www.blogger.com/profile/12826767219817446341noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-79585135813379222592012-01-10T22:26:47.925-08:002012-01-10T22:26:47.925-08:00I caught the House episode last night concerning A...I caught the House episode last night concerning AIWS, and it sounded familiar - casting me on a google search about it. I experienced similar symptons when I was younger - mainly during the school years. It would usually come while reading something intensive or complex, while laying my back - sometimes under a dim light. I was normally at the point of wanting to drift off to sleep when something would "switch" in my brain...and everything would seem very close (yet far at the same time) and sooooo still. Sounds would be pure, far away, but so close as if whispered right in my ear. TV sets, lights, dressers across the room were light years away...but within sniffing distance at the same time. Nothing ever scared me, and I just chalked it up to tired eyes, tired brain - enjoy it for the moment. I always knew that I could always just look away, move a bit, and shake it off. These events only lasted a few moments at a time, and back then, maybe once or twice a week while reading. Later in life, especially if I was keeping very late hours, it would happen while watching tv - but very infrequently. No one ever knew... I didn`t think it was worth discussing. Now, as an adult, I do suffer from ocular migraines now and then -- so maybe there is a correlation. I find it all fascinating.Judyhttps://www.blogger.com/profile/06392074629395072056noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-7122890161741557102012-01-10T22:26:46.283-08:002012-01-10T22:26:46.283-08:00I caught the House episode last night concerning A...I caught the House episode last night concerning AIWS, and it sounded familiar - casting me on a google search about it. I experienced similar symptons when I was younger - mainly during the school years. It would usually come while reading something intensive or complex, while laying my back - sometimes under a dim light. I was normally at the point of wanting to drift off to sleep when something would "switch" in my brain...and everything would seem very close (yet far at the same time) and sooooo still. Sounds would be pure, far away, but so close as if whispered right in my ear. TV sets, lights, dressers across the room were light years away...but within sniffing distance at the same time. Nothing ever scared me, and I just chalked it up to tired eyes, tired brain - enjoy it for the moment. I always knew that I could always just look away, move a bit, and shake it off. These events only lasted a few moments at a time, and back then, maybe once or twice a week while reading. Later in life, especially if I was keeping very late hours, it would happen while watching tv - but very infrequently. No one ever knew... I didn`t think it was worth discussing. Now, as an adult, I do suffer from ocular migraines now and then -- so maybe there is a correlation. I find it all fascinating.Judyhttps://www.blogger.com/profile/06392074629395072056noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-43772996792599232342012-01-10T22:26:10.308-08:002012-01-10T22:26:10.308-08:00I caught the House episode last night concerning A...I caught the House episode last night concerning AIWS, and it sounded familiar - casting me on a google search about it. I experienced similar symptons when I was younger - mainly during the school years. It would usually come while reading something intensive or complex, while laying my back - sometimes under a dim light. I was normally at the point of wanting to drift off to sleep when something would "switch" in my brain...and everything would seem very close (yet far at the same time) and sooooo still. Sounds would be pure, far away, but so close as if whispered right in my ear. TV sets, lights, dressers across the room were light years away...but within sniffing distance at the same time. Nothing ever scared me, and I just chalked it up to tired eyes, tired brain - enjoy it for the moment. I always knew that I could always just look away, move a bit, and shake it off. These events only lasted a few moments at a time, and back then, maybe once or twice a week while reading. Later in life, especially if I was keeping very late hours, it would happen while watching tv - but very infrequently. No one ever knew... I didn`t think it was worth discussing. Now, as an adult, I do suffer from ocular migraines now and then -- so maybe there is a correlation. I find it all fascinating.Judyhttps://www.blogger.com/profile/06392074629395072056noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-55806005735170391082011-11-21T21:46:26.813-08:002011-11-21T21:46:26.813-08:00This is something I have some similar signs of at ...This is something I have some similar signs of at times. Very interesting though isn't it? Blogged a little about it too: http://alysagoodstuff.blogspot.com/2011/11/alysa-good-stuff-favorites-alice-in.htmlThe Christian View in OChttps://www.blogger.com/profile/10509281363484241799noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-19324813287860220662010-08-18T13:33:09.364-07:002010-08-18T13:33:09.364-07:00Wow, am finally getting around to trying to catch ...Wow, am finally getting around to trying to catch back up with my Medicana blog and was amazed to see so many comments on the Alice in Wonderland Syndrome. I had never realized this syndrome even existed and it seems as if it is not all that uncommon if so many of you have had these symptoms. Thanks for participating in the discussion and sharing your experiences.Mauigirlhttps://www.blogger.com/profile/15529827915262851910noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-9325668613995605342010-03-11T11:01:13.680-08:002010-03-11T11:01:13.680-08:00We are looking for people with this syndrome for a...We are looking for people with this syndrome for a new documentary on a well-respected cable network. Participants will receive free help from our top-notch experts in the field. If you are interested please email us today <br />helpshowcasting @gmail.comMad Dad 10https://www.blogger.com/profile/01300100077991517322noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-20295491403433172102010-02-15T12:40:58.614-08:002010-02-15T12:40:58.614-08:00I've been suffering from AIWS since I was a ch...I've been suffering from AIWS since I was a child and I'm 27 now. I have always called them "fast dreams" even though they occur when I'm awake. The episodes normally happen late at night when I'm very relaxed, laying in bed and trying to fall asleep. I begin to feel very tiny compared to the room around me and the room feels very far away. Sounds in the room next to me sound amplified as though people are yelling. Every movement I make, no matter how slow it is, feels like I'm moving at the speed of light. When I was a child these episodes used to scare me a lot. I would get out of bed and lay with my mom and dad until they went a way. They normally last about 10-15 minutes. Now they happen about 3 times a year. I don't suffer from headaches or epilepsy but am borderline bipolar and am medicated.Unknownhttps://www.blogger.com/profile/01654799995696894419noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-57735298849177316322009-11-24T15:31:48.278-08:002009-11-24T15:31:48.278-08:00I suffer with aiws however I dont get migraines or...I suffer with aiws however I dont get migraines or rarely headaches. It usualy happens if I have an argument with my girlfriend lol. What makes it stranger is that both myself 21 and my brother 25 have it. But its really interesting when it happens, and when I think to myself in my head it feels like im shouting at myself...hard to explain really :Sgekozenhttps://www.blogger.com/profile/01456438063374299191noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-90663362923484426052009-11-24T15:29:14.956-08:002009-11-24T15:29:14.956-08:00I suffer with aiws however I dont get migraines or...I suffer with aiws however I dont get migraines or rarely headaches. It usualy happens if I have an argument with my girlfriend lol. What makes it stranger is that both myself 21 and my brother 25 have it. But its really interesting when it happens, and when I think to myself in my head it feels like im shouting at myself...hard to explain really :Sgekozenhttps://www.blogger.com/profile/01456438063374299191noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-71370014650736142542009-11-10T03:06:13.653-08:002009-11-10T03:06:13.653-08:00Hi i have found your posting very interesting, as ...Hi i have found your posting very interesting, as I have been a sufferer of this condition for 12 months now. The amount of problems that this has caused me is life altering. I am unable to walk on patterned carpets, misjudge steps and spaces, resulting in many accidents. Visually my eyes see normally but they do not relay to my brain what they see. I am unable to eat and live on supplements due to the smell of food. I lose total sensation in my arms and legs at different times. Pictures and the TV are distorted, and often I write or read complete gobbledygook. I am a nursing manager in the UK but have very recently had to finish my job as every day tasks are too difficult. I am under an excellent Neurologist who is desperately trying to help me, but with the syndrome I have developed a global sensatisation which means that the drugs that may have helped me have made me very ill.It is still trial and error.My heart goes out to anyone with this condition.Heatherhttps://www.blogger.com/profile/16969135344004232268noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-17804648374165060182009-07-19T02:19:29.962-07:002009-07-19T02:19:29.962-07:00Hi! thanks for your article!
I suffer from AIWS si...Hi! thanks for your article!<br />I suffer from AIWS since I was a child. I also started suffering from Multiple Chemical Sensitivity about a year ago. With Multiple Chemical Sensitivity my AIWS' symptoms have increased. I think chemicals caused me AIWS. Maybe it was cough syrup. I noticed odd smells everytime I suffered an AIWS episode when I was a child, like your friend did.Mayhttps://www.blogger.com/profile/08242467079858819473noreply@blogger.comtag:blogger.com,1999:blog-726388883619960935.post-48400381022535914022009-07-04T07:41:44.848-07:002009-07-04T07:41:44.848-07:00Hi Mauigirl!
I also suffer from AIWS since around ...Hi Mauigirl!<br />I also suffer from AIWS since around 3 years old (31 years now). At first, when as a child, I was scared every time I had those 10 minutes episodes of AIWS, but since my 18, I live with that with no worry.<br />Normally, when around 15 years old, I had about 2-3 times a week, around 18 only 1 a month, now around 1 every 1 or 2 months.<br />That was usually at night, before I started to sleep.<br />Perception of space is deformed, because when looking to my hands seemed really small, and feet seemed too distant. Sounds didn't seem to stop. If I heard a voice, seemed he was shouting even after stopping to talk. Spongy feeling of hands and other parts of my body were also present.<br />I do not have headaches, and I could say I had no more than 20 headaches during all my life... so AIWS is not only for people with headaches.NunoFhttps://www.blogger.com/profile/06594789427457994333noreply@blogger.com